Tag: special needs parenting
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Published for Tracheostomy Awareness Week to help educate and reduce misconceptions about life with a tracheostomy. Our Introduction to Trach Life By the time Victory was 2 months old, we had already been living at the hospital 24/7 for weeks. We had learned more medical terminology than we ever imagined possible and honestly thought we…
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March 13 was World Trisomy 13 Day. It is a day dedicated to raising awareness about Trisomy 13 and honoring the children and families whose lives are touched by it. Around the world, many people wear yellow on this day as a symbol of support and awareness. Some families also include pink and green, colors that have become…
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If you’re the parent of a medically complex child, leaving the house can feel like preparing for a small expedition. It’s not just grabbing your keys and heading out the door. It’s medications, emergency equipment, feeding supplies, backup supplies, documentation, and a hundred other little things that you really donât want to forget once you’re already…
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The holiday season â whether youâre celebrating Christmas, Hanukkah, or both â brings so much joy⌠and a fair bit of extra planning when youâre caring for a medically complex or special needs child. Thatâs exactly why finding the right special needs holiday gifts can make such a difference for our kids and for us as parents.…
